I am mum to two beautiful children – a vibrant and energy filled 2 year old (here known as “Bean”) who loves anything with wheels, rice crackers and the Wiggles and a mischievous and determined 4 year old (here known as BC – short for Big Chicken, his loving nickname) who loves trains, bananas (both those you eat and those who wear pyjamas) and puzzles. He also has athetoid cerebral palsy (CP) as a result of a birth injury. CP is the nothing but everything in our happy busy family as we learn about the condition, seek out alternative therapies (from point percussion to conductive education to osteopathy and beyond…) and watch both our gorgeous boys blossom.
‘BM’ – Before motherhood, I was a teacher and still teach English online. I have no desire to return to secondary school teaching though. I think I’ll be ready to tackle teenagers again when it’s time to deal with my own teenaged boys!
2 responses so far ↓
Lynne // April 1, 2008 at 1:19 am |
Hi
Your article on rolfing caught my eye. I have a 7 yr old beautiful daughter with athetoid, dystonic CP. We are always looking for alternative treatments as mainstream medicine offers very little to her. Currently weare at Ability Camp where she is receiving 5 weeks of Conductive ed as well as hyperbaric oxygen therapy. we have done this many times and I am convinced that my daughter has speech because of the oxygen therapy. She did not speak till she was almost 4, now she argues with me!!! Anyhow, email me if you like. thanks for the rolfing info. I will try it for sure!
Lynne
karamelissa // March 23, 2009 at 11:04 am |
Hi. I found your blog linked from Terrible Palsy. I haven’t been able to stop reading it, I’m almost caught up to the present as I’m going through the archives! Your birth story really resonated with me as it was so similar to the birth of my son who has been diagnosed with Dystonic CP. He is 10 months old. From my research I think that the type of CP your son has is similar to my son’s, so I’ve really been interested in the types of therapy you mention as well as your journey with your family. I would like to email you properly/ask some questions, if you get in touch I will respond in kind. I have read a lot of blogs in my search for information and understanding about my son’s diagnosis, but for the first time I am smiling and it’s because of the way that you share your story. Thank you!