About Me

I am mum to three beautiful children – a gorgeous cheeky and bouncy 3 year old ( A), a vibrant and energy filled 5 year old on the autism spectrum (here known as “M”) who loves trains, trains and more trains, a sweet and determined 8 year old (here known as S) who loves making up games, reading books and helping mum make muffins. He also has athetoid/ataxic cerebral palsy (CP) as a result of a birth injury. CP is the nothing but everything in our happy busy family as we learn about the condition, seek out alternative therapies (from point percussion to conductive education to osteopathy and beyond…) and watch our three gorgeous boys blossom.

Before motherhood, I was a teacher and still teach English online. I have no desire to return to secondary school teaching though. I think I’ll be ready to tackle teenagers again when it’s time to deal with my own teenaged boys!

6 Responses to “About Me”

  1. Lynne April 1, 2008 at 1:19 am #

    Your article on rolfing caught my eye. I have a 7 yr old beautiful daughter with athetoid, dystonic CP. We are always looking for alternative treatments as mainstream medicine offers very little to her. Currently weare at Ability Camp where she is receiving 5 weeks of Conductive ed as well as hyperbaric oxygen therapy. we have done this many times and I am convinced that my daughter has speech because of the oxygen therapy. She did not speak till she was almost 4, now she argues with me!!! Anyhow, email me if you like. thanks for the rolfing info. I will try it for sure!

  2. karamelissa March 23, 2009 at 11:04 am #

    Hi. I found your blog linked from Terrible Palsy. I haven’t been able to stop reading it, I’m almost caught up to the present as I’m going through the archives! Your birth story really resonated with me as it was so similar to the birth of my son who has been diagnosed with Dystonic CP. He is 10 months old. From my research I think that the type of CP your son has is similar to my son’s, so I’ve really been interested in the types of therapy you mention as well as your journey with your family. I would like to email you properly/ask some questions, if you get in touch I will respond in kind. I have read a lot of blogs in my search for information and understanding about my son’s diagnosis, but for the first time I am smiling and it’s because of the way that you share your story. Thank you!

  3. Caroline Ward November 17, 2009 at 2:01 pm #

    Actually, now I think you might be in Australia – in which case RDA may have changed its name to Rideability. Sorry!

  4. Pauline Maroney June 5, 2010 at 9:52 am #

    Hi. Came upon your message by accident and wanted to wish you and your lovely children all the best for the future. My daughter Susie and her beloved twin brother Sean did indeed have cerebral palsy. Did not quite manage to hide it when they were young particularly. I think being called “Raggedy Ann” at school sums up some of it. I kept a diary when they were young of their milestones and would be happy to share it with you.

  5. debbie December 20, 2010 at 2:44 am #

    hi i have just read your posts about proloquo2go and i was really impressed. i just downloaded p2go on friday for my daughter who has Aicardi Syndrome, she is non verbal and we too had the mini mo but callee was not interested unless her speechie was using it with her. i saw p2g and thought why not give it a try as she loves scrolling through my iphone and playing the free apps i have for her. Well like i said downloaded on friday, her ipad is wrapped and under the tree BUT i am too scared to use the app. it is so overwhelming, i am scared i am going to delete things when i start customermizing it for her. how did you feel initially. would love to know more….regards debbie

  6. Aileen Ryan January 24, 2012 at 12:26 am #

    Hi Aileen here. I have a daughter using Proloquo2Go – infrequently at the moment as she is still in a full signing environment. I do email support for AssistiveWare and love catching up with fellow Aussies using Proloquo2Go. Love your articles and stories on you and your family. Keep up the good work

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