On Thursday, BC had a review appointment for his Second Skin body suit.
As I’ve written before, we love this suit. MUCH more so than his first suit (as in his first Second Skin suit, compared to his second Second Skin suit )
The first suit had too many zips, took longer to put on, was a pain to take off for nappy changes etc and BC HATED the way it restricted his movement.
The restrictions were deliberate, as one of the aims of the suit is to promote CORRECT movement as opposed to the EASIEST ways of moving – but that’s difficult to explain to a little boy who suddenly found he couldn’t crawl or walk the way he wanted to…
Within minutes of putting the first suit on, BC would be begging to take it off. AND what’s more, he grew out of it very quickly.
Given the price tag attached to the suits, we were not sure we would try for a second time.
However, as we had already been incredibly fortunate enough to secure some funding AND as we had seen the potential of the first suit, we decided to give it a go.
We’ve had this second suit for 6 months and the difference in BC’s balance, coordination and strength has really been astounding. It’s difficult, of course, to know how much we can put this down to the Second Skin suit, but I am 100% sure it has made some difference.
He is now able to take up to 20 independent steps (only on a flat indoor surface and still very wobbly and not always really well controlled, but definitely independent – woohoo!). He can sit on a regular chair with much better balance and control. He can literally RUN in his kaye walker and his endurance has increased dramatically.
In short, it’s been a very GOOD 6 months.
The review was to see how the suit is going fitting wise and also to check that it’s doing all the things it should be doing.
It was the first time we’d met the lovely lady who conducted the review, so she was relying only on the notes given to her to see the difference in BC’s movement, but even based only on that, she was impressed.
She was also very satisfied (as we are) that the suit is still fitting well and will hopefully have much more life in it. We have been tentatively been placed on the list for another review in Feb, but we’ll only take that up if we see that BC has had a real growth spurt.
If all is still going well, then we’ll skip that appointment and have a further review in May next year.
As we’ve yet to make use of the inserts that we’ve been given to ‘expand’ the suit (and there’s a few seams that can also be unstitched to make it bigger), I am confident that we won’t be needing to go back until May.
We are really happy with the suit and while BC continues to really dislike ‘putting on’ the suit, once it IS on, he is very happy to be wearing it and I think is really able to feel the benefits of the support that it provides – and yes, he still loves being Spiderboy .